Methods for living guidelines: early guidance based on practical experience. Paper 2: consumer engagement in living guidelines

Abstract

Objectives

To introduce methods for living guidelines based on practical experiences by the Australian Living Evidence Consortium (ALEC), the National Institute of Health and Care Excellence (NICE), and the Infectious Diseases Society of America (IDSA), with methodological support from the US Grading of Recommendations, Assessment, Development and Evaluations (GRADE) Network.

Study Design and Setting

Members of ALEC, NICE, and the US GRADE Network, convened a working group to share experiences of the methods used to develop living guidelines and outline the key differences between traditional and living guidelines methods.

Results

The guidance includes the following steps: 1) deciding if the guideline is a priority for a living approach, 2) preparing for living guideline development, 3) literature surveillance and frequency of searching, 4) assessment and synthesis of the evidence, 5) publication and dissemination, and 6) transitioning recommendations out of living mode.

Conclusion

This paper introduces methods for living guidelines and provides examples of the similarities and differences in approach across multiple organizations conducting living guidelines. It also introduces a series of papers exploring methods for living guidelines based on our practical experiences, including consumer involvement, selecting and prioritizing questions, search decisions, and methods decisions.

Read the full publication here:

https://www.jclinepi.com/article/S0895-4356(22)00344-4/fulltext

Authors

Anneliese Synnot, Kelvin Hill, Julie Davey, Kevin English, Samuel L. Whittle, Rachelle Buchbinder, Suzie May, Heath White, Alexander Meredith, Eleanor Horton, Rebecca Randall, Anneka Patel, Stella O'Brien, Tari Turner